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What is Endometriosis?

July 14, 2024 

Written by: Sadikah Behbehani, MD

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Endometriosis is a complex, often painful disorder where tissue similar to
the lining of the uterus (endometrium) implants and grows outside the
uterus. One of the most frustrating aspects of endometriosis is the wide
range of painful experiences it can cause. Some women experience
debilitating pain while others feel little to no pain at all.  While endometriosis
primarily affects the reproductive and digestive systems, it can indirectly
cause musculoskeletal pain throughout the body and research has even
linked it to headaches including migraines.

 

Endometriosis is a surprisingly common condition but pinpointing its exact
prevalence is challenging.  The most generally accepted estimate is that
approximately 10-15% of women of reproductive age in the U.S. have
endometriosis.  However many cases of endometriosis go undiagnosed
due to the normalization of painful periods, lack of awareness of the
disorder, and some women with mild symptoms may not seek medical help
or might self-manage symptoms.  Furthermore, confirming endometriosis
definitively requires laparoscopic surgery, which is not done for everyone
experiencing suggestive symptoms and perhaps is why endometriosis is
sometimes misdiagnosed as IBS, pelvic inflammatory disease, and other
disorders.

Signs & Symptoms of Endometriosis

Endometriosis can cause a wide range of symptoms, which vary greatly in
type and severity from woman to woman.  Pain often exceeds typical
period cramps, and sometimes debilitates.  Discomfort may begin several
days before your period and continue for an extended period. Pain is not
limited to just cramps and can radiate to other areas.

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Chronic Pelvic Pain

 

  • A persistent ache or pressure in the lower abdomen, even between menstrual cycles.  Deep pain during or after intercourse.

Painful Bowel Movements or Urination

  • Especially during menstruation, if endometriosis affects the bowels or bladder.

What is Endo Belly?

Endo belly is a term that’s been adopted to describe the stomach bloating
that in some cases accompanies women with endometriosis.  In clinical
language we would characterize endo belly as abdominal distention,
meaning due to internal pressure, the stomach region is enlarged or
swollen. This distention or internal pressure can range from mild discomfort
to intense pressure.


The chronic inflammation in the pelvis region caused by endometriosis can
lead to tissue swelling and fluid build-up within the abdomen.   Additionally,
endometriosis affecting the intestines can result in constipation,  bloating,
irregular bowel habits – all contributing to the belly bulging.  The bloating
often worsens around the time of menstruation due to the endometriosis-
driven hormonal shifts, and can be further exacerbated by how
endometriosis can wear down pelvic floor muscles.  


Helpful strategies in managing endo belly include adopting an anti-
inflammatory diet focusing on whole foods, and discussing with your GI
doctor ways to reduce inflammation.  


Regular exercise promotes improved blood flow and lymphatic drainage
which can help decrease fluid retention and the feeling of heaviness in the
belly.  Exercise encourages regular bowel movements and for those with
endometriosis affecting the bowels, this can reduce bloating and

constipation. Additionally, exercise lowers stress levels and improves
mood, both of which can worsen endo belly is left unmanaged. 


Diagnosing the cause of abdomen bloating generally involves a thorough
history, possibly referrals to see a bowel specialist, and referral to an
endometriosis specialist to rule out ovarian cysts or other uterine issues
that may be causing your bloated belly.

Endometriosis Treatment

There is no one-size-fits-all protocol for endometriosis treatment as the
condition is highly individualized and aims to manage your unique
symptoms, slow disease progression, remove the disease entirely or
improve fertility – and sometimes all of the aforementioned simultaneously.
Seeking care from an endometriosis specialist is essential in receiving the
appropriate care. It takes an average of 10 years for women to be
appropriately diagnosed with endometriosis which can make it a frustrating
experience.


If you suspect you have endometriosis, follow @endo_fertility on Instagram
and visit www.endometriosis-fertility.com to learn more about IVF,
endometriosis and pelvic pain.


If you have any questions about endometriosis diagnosis and treatment, please contact Dr. Sadikah Behbehani's office.
 

Center for Endometriosis and Fertility

+1(949) 200-9038

 

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